Word(less) Wednesday: Getty Owl Foundation Tell 5!

photo from the post Memories In Our Hearts Forever

A few months ago I shared a post about Baby Getty, the Getty Owl Foundation and Lullabies for Getty.  Baby Getty is a sweet bay girl who was diagnosed with Spinal Muscular Atrophy Type 1 (SMA1).  Her parents started a a foundation knowing that a cure may not be possible in Baby Getty's life time but that maybe one would be found one day or at the very least they can educate people about SMA.  

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So, last month, Mama Getty posted Tell 5! She had the idea that if 5 people, told 5 people, who told 5 people... about SMA it would raise awareness of this horrendous genetic disorder.  SMA, however, is one of the closest neurological diseases that can be treated IF the resources where made available. IF resources are available.

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I told 4 women who will become mothers one day...

and one who is a mother now...

and now... I'm telling you.

To learn more about SMA, Getty Owl Goundation or Baby Getty please go to http://gettyowl.com

A Love Story * Sweet Water Child: Lullabies for Getty

I am a daily reader of Dear Crissy and when I saw her post on Sweet Water Child: Lullabies for Getty I was intrigued... her post lead me to Lullabies for Getty.

What I was surprised and admittedly saddened to find was a love story  for a sweet baby named Getty who was diagnosed with Spinal Muscular Atrophy Type 1 (SMA1).  She was born a day after my Jamba Mama and despite the despair I am sure her family feels at times and shares in her blog, the whole blog is just an amazing story of life and hope. 

They have also started a foundation, Getty Owl Foundation, to help find a cure and help other families.  The generosity they show is overwhelming.

All donations to GETTY OWL FOUNDATION will be used to support the charitable cause of GETTY OWL FOUNDATION and not baby Getty personally.

photo from the post Memories In Our Hearts Forever

This family, their beautiful baby girl and their story is truly as amazing.  I urge you to check out the site and take a listen to the Lullabies for Getty.  The music is so sweet and so pure.  I can't wait to share it with my babies.